How to make people with learning disabilities feel more included in society

Thomas from St Roses School, Stroud, playing the Clarion, an instrument designed for people with learning disabilities. Laura Naylor, Author provided

Val Williams, University of Bristol

People with learning disabilities can often find themselves feeling excluded when it comes to making decisions about their lives. This can range from everything, from shopping to making music or even bringing up a baby. Sometimes this exclusion can be exacerbated by the kind of support that they receive from social services – but it can also be countered by sensitive personal assistance or support. Continue reading

Furthering Women’s Democracy in a Brexit Environment

Image credit: Jeff Djevdet

“We need a new gender contract for the UK.” Thus surmised Professor Yvonne Galligan Queens University Belfast at the end of the WIDEN symposium that took place in the University of Bristol in May 2018. With the 4 UK nations represented, the 3 sponsoring universities of Bristol, West of England and Bath, and 16 speakers from women’s and anti-discrimination organisations, universities, and trade unions, this was a day of knowledge sharing from practitioner, activist and interdisciplinary research perspectives. Continue reading

Setting the priorities for advanced heart failure research

by Dr Rachel Johnson
Clinical Research Fellow
Centre for Academic Primary Care

This week sees the launch of the James Lind Alliance Advanced Heart Failure Priority Setting Partnership Survey to gather research ideas from those living or working with advanced heart failure. Continue reading

Forced marriage convictions are welcome but for many victims stigma is still judge and jury

Forced marriage is still common in some cultures, but younger generations reject it.
Rahul Ramachandram/Shutterstock

Geetanjali Gangoli, University of Bristol

In the four years since a change in the law regarding forced marriages in England and Wales, there have been two cases where parents have been convicted of forcing their daughters to marry by taking them out of the country to their countries of origin.

One case, in Birmingham in May 2018, involved taking a daughter to Pakistan, the other – in Leeds, also in May 2018 – involved a couple luring their daughter to Bangladesh for a forced marriage. These were the first convictions of their kind in England. In 2015, a man was jailed for forced marriage (among other offences) after a Welsh court found he had raped and blackmailed a woman into marrying him. Continue reading

‘Land grab’ on hurricane-hit Barbuda could leave the island almost entirely owned by banks

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Bennylin / wiki, CC BY-SA

Tomaso Ferrando, University of Bristol

Hurricane Irma passed directly over the tiny Caribbean island of Barbuda in September 2017. Irma was the fifth strongest hurricane ever recorded in the Atlantic, and it reached peak intensity just before landfall, when 180mph winds damaged almost every structure on the island, flattening many of them. Continue reading

Autism not linked to eating fish during pregnancy – large new study

CKP1001/Shutterstock.com

Caroline Taylor, University of Bristol

Eating fish while you’re pregnant does not increase the chance that your child will be autistic or have autistic traits, our latest study shows. In fact, our study suggests that fish may be beneficial for the development of a healthy nervous system.

A possible link between mercury exposure and autism has been the subject of much debate over the years. In pregnancy, mercury travels in the mother’s blood through the placenta and into the foetus, where it acts as a toxin, affecting the development of the foetal nervous system. Continue reading

Finding a better way to identify children experiencing domestic violence

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Shutterstock

Natalia Lewis, University of Bristol

Around one in five children in the UK have been exposed to domestic violence or abuse between their parents or caregivers. When adults are involved in an abusive relationship, their children bear the consequences. Continue reading

Five lessons for researchers who want to collaborate with governments and development organisations but avoid the common pitfalls

The appeal of collaborating with a government agency, or an organisation funded by one, seems obvious. It provides researchers with much needed resources and information, while also offering practitioners and policymakers a way of generating the evidence needed to design better programmes. Continue reading

Food and drink options in NHS settings; new questionnaire prompts changes

 

Photo Credit: Christopher Gross/Released

Dr Fiona Lithander, Senior Research Associate, NIHR Bristol Biomedical Research Centre.

Fiona explains how a new questionnaire could be used to increase healthy food and drink options in hospital retail outlets

At the National Institute for Health Research (NIHR), Bristol Biomedical Research Centre we are interested in the role the NHS plays in promoting good nutrition and health in children. Recent reports have shown a quarter of children in the UK are overweight or obese; a worrying statistic in itself, and the problem doesn’t appear to be getting any better.

NICE guidelines say that retail outlets in hospitals such as shops, cafes, restaurants and vending machines should offer healthy food and drink options, and that these options should be prominently displayed. They also say that nutritional information about the foods on their menus should be available. These guidelines do not refer to foods served to patients, although patients may have access to foods and drinks for sale onsite.

At NIHR Bristol Biomedical Research Centre we developed a new questionnaire to help NHS Trusts assess how healthy their food and drink options are. This differs from other questionnaires in that it allows Trusts to compare their findings with the NICE guidelines. Trusts can use this questionnaire to measure how healthy prepared foods for sale are, and can make changes accordingly. These changes may involve, replacing sugary drinks with sugar-free options such as water, and replacing chocolate bars with more healthy options such as unsalted nuts.

Using this questionnaire, we measured how healthy the foods and drinks were in two Trusts, and how closely they followed NICE guidelines. Our findings showed a lack of healthy food and drink options for sale in vending machines. Nutritional information on menus was minimal, and there was limited promotion and advertising of healthy foods and drinks. Since the findings were published, both of the Trusts have made improvements.

Our plan is to further develop the questionnaire in conjunction with the NICE guidelines, so that it can be used more widely in NHS Trusts and in local authority settings, such as leisure centres. Making it easier for parents to direct their children to healthier choices should be a central element of our healthcare system.

Disclaimer: This study was supported by the NIHR Biomedical Research Centre at the University Hospitals Bristol NHS Foundation Trust and the University of Bristol. The views expressed in this article are those of the author(s) and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health.

This blog was originally published by the National Institute for Health and Care Excellence (NICE)

Justice for victims of sexual abuse and harassment. Lessons for Westminster?

Dr Lis Bates is a researcher in gender-based violence at the School for Policy Studies, and a former clerk of the House of Commons

The problem with Westminster

As a former clerk of the House of Commons, the recent Newsnight coverage(i) depicting a culture of unchecked bullying and sexual harassment by some MPs took me by surprise. Not because of the allegations: the stories reported, and many more, have long been open secrets in Westminster. But because, for the first time, the corrosive culture of normalising this behaviour was revealed. What is new is that the careful investigation of reporters Chris Cook and Lucinda Day has exposed a pattern of abusive Members not being held to account, and a historic management culture of quietly moving victims who speak out. This is a culture which has normalised the acceptance of bullying behaviour, refused to shine a light on the bullies, and thus tacitly condoned it. This is the same cultural quicksand which led us to Weinstein, Bennell and Saville: a wilful collective blindness. Continue reading